Huntington's disease is a progressive, neurodegenerative disorder that affects mobility, balance, speech, behavior, cognition and overall functioning. The Huntington's Disease Center consists of an interdisciplinary team of health professionals dedicated to providing clinical care and research opportunities to patients and families dealing with Huntington's Disease. The primary function of this position is to coordinate assigned observational studies and clinical trials conducted through the Huntington's Disease Center. Screening new patients/participants and scheduling appointments for clinic. Pertaining to research study activities as listed below:
Recruitment and retention of study participants, including tracking visits
Scheduling participants, facilities, and practitioners required to complete study visit
Prepare for study visits
Complete study visits, which includes but is not limited to obtaining informed consent, administering research assessments, completing study visit documentation
Collecting clinical history information, obtaining medical records as needed, and data entry
Obtaining a copy of scan data and uploading
Process, store, and ship lab samples
Prepare documents for IRB renewals, modifications, annual submissions and correspondence.
Oversee petty cash for assigned projects and assist with financial tracking and confirmation of invoices for study related expenses.
Responsible for inventory and procurement of laboratory and office supplies
The staff member will be trained to work with patients/participants with Huntington's disease and their families and the specific needs, concerns and ethical issues involved in dealing with patients with a genetically inherited neurodegenerative disorder, as well as how to administer assessments, follow a protocol, complete documentation and IRB submissions. They will receive supervision by Ms. Wasserman to ensure adherence to all regulatory, institutional, and departmental guidelines and the research protocol. The staff member will require significant supervision early on and it is anticipated they will be able to work more independently over time. During study visits, clinical issues often arise. The staff member will meet with the director of clinical services, Ms. Thorne, to help keep them within their scope of work. Dr. Marder will provide direct input and oversight regarding adverse events, protocol violations, and subject eligibility/enrollment.
Internal Number: 1999
About Columbia University
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